http://hdl.handle.net/2173/31599 Sat, 25 May 2013 13:29:31 GMT 2013-05-25T13:29:31Z http://hdl.handle.net/2173/84225 Title: Review of learning disability research 1995-2003 Authors: Mitchell, Duncan; Northway, R.; Kaurmann, K. Sat, 01 Jul 2006 00:00:00 GMT http://hdl.handle.net/2173/84225 2006-07-01T00:00:00Z http://hdl.handle.net/2173/84237 Title: Barriers to caregiver compliance with eating and drinking recommendations for adults with intellectual disabilities and dysphagia Authors: Chadwick, Darren D.; Joliffe, Jane; Goldbart, Juliet; Burton, Mark Abstract: Background: There is scant research on the subject of dysphagia and people with intellectual disabilities. This study explores the barriers which caregivers believe make following Speech and Language Therapists' (SLTs) dysphagia management strategies more difficult. Method: Semi-structured open-ended interviews were conducted with 46 caregivers who supported 40 intellectually disabled adults with dysphagia. Results: Caregivers perceived particular difficulties in modifying food and drinks to safe consistencies, achieving the agreed positioning during mealtimes, and in using support and prompting strategies. Problematic support and prompting strategies included difficulties with pacing correctly; facilitating people to adequately relax and concentrate; observing and prompting people to pace suitably and take safe amounts of food and drink in each mouthful. Additional barriers identified included time pressures, staff turnover and insufficient reviewing of SLT management strategies by caregivers. Conclusions: Findings suggest that additional training and monitoring is required to ensure caregivers are aware of their role and responsibility in promoting safe oral intake for adults with dysphagia and intellectual disabilities. Ongoing support is suggested for people with intellectual disabilities and dysphagia to help them understand the reasoning behind management strategies. Description: Darren D. Chadwick, Jane Jolliffe, Juliet Goldbart and Mark H. Burton. Barriers to caregiver compliance with eating and drinking recommendations for adults with intellectual disabilities and dysphagia. Journal of applied research in intellectual disabilities, 2006, vol. 19, no. 2, pp. 153-162. Published by and copyright Wiley-Blackwell Publishing. The definitive version of this article is available from http://www.blackwell-synergy.com/ Thu, 01 Jun 2006 00:00:00 GMT http://hdl.handle.net/2173/84237 2006-06-01T00:00:00Z http://hdl.handle.net/2173/84223 Title: Predictors of asphyxiation risk in adults with intellectual disabilities and dysphagia Authors: Chadwick, Darren D.; Samuels, Rachel Abstract: Background: Adults with learning disabilities referred for assessment of their eating and drinking are frequently reported to cough and choke when eating and drinking. The research literature investigating dysphagia has often overlooked asphyxiation risk, highlighting coughing and choking as indicators of aspiration only. This is a notable oversight due to the prevalence of asphyxia as a cause of mortality in this population. Aim: This study aims to identify the physiological and environmental factors that predict asphyxiation risk in adults with intellectual disabilities and dysphagia. Method: Data were collected from dysphagia-trained speech and language therapists (SLTs) working with the participant adults with intellectual disabilities and dysphagia. The SLTs used case notes, clinical assessment and videofluoroscopic assessment reports to gather the data. Results: Speed of eating, cramming food and premature loss of the bolus into the pharynx were identified as significant predictors of asphyxiation risk in this population. Conclusions: The findings highlight the importance of maladaptive eating strategies in exacerbating the risk of asphyxiation and choking. These factors should be considered in the assessment of asphyxiation and choking risk and management. Finally, the need for joint assessment and management with other members of the multidisciplinary team is advocated. Description: R. Samuels and D. D. Chadwick. Predictors of asphyxiation risk in adults with intellectual disabilities and dysphagia. Journal of intellectual disability research, 2006, vol. 50, no. 5, pp. 362-370. Published by and copyright Wiley-Blackwell Publishing. The definitive version of this article is available from http://www.blackwell-synergy.com/ Mon, 01 May 2006 00:00:00 GMT http://hdl.handle.net/2173/84223 2006-05-01T00:00:00Z http://hdl.handle.net/2173/75993 Title: Adherence to eating and drinking guidelines for adults with intellectual disabilities and dysphagia Authors: Chadwick, Darren D.; Joliffe, Jane; Goldbart, Juliet Abstract: The extent to which 40 individuals with intellectual disabilities and dysphagia and their caregivers adhered to speech and language pathology dysphagia guidelines was evaluated. These individuals were observed having a meal across four settings. In addition to monitoring overall adherence, guidelines were split into separate sections corresponding to consistency modification of food and drinks, physical positioning, use of equipment and utensils, and support and prompting recommendations. Adherence to speech and language pathology recommendations was generally high, particularly regarding consistency modification that can help reduce the risks of aspiration and asphyxiation. Significant differences in adherence were found across settings, across type of guidelines, and between people who were fed by caregivers and those who fed themselves. Description: Full-text of this article is not available in this e-prints service. This article was originally published [following peer-review] in American Journal on Mental Retardation, published by and copyright American Association on Intellectual and Developmental Disabilities. Thu, 01 May 2003 00:00:00 GMT http://hdl.handle.net/2173/75993 2003-05-01T00:00:00Z